Yesterday was filled with wonderful blessings for Mom & Dad. Mark and his family were able to join in the Christmas festivities at Uncle Ray and Aunt Christine's house. Mom had not had opportunity to see Mark, Haustin and Garrett since last May. What joy filled her heart to lay hands on all three "boys"! Felicia and Emily had been up to stay with Mom a few months back but it was just as good for Mom to see them, too. The Morrison's enjoyed Christmas day and then were able to stay the night at the Egan's. Mom & Dad were able to have breakfast with them at the Egan's this morning before the Morrison's headed back to the ranch and Mom needed to head off to the Infusion Ward. How delightful!
When I talked with Mom this morning, she was so pleased with how Christmas had gone. Two of Uncle Ray and Aunt Christine's children and their families were able to be there as well. Kathie, Scott, Tucker & Cody Laurence and Brian & Auga Egan and their nine month old son, Sean, added to Mom's joy. A delicious meal of ham, mashed potatoes, broccoli and a wonderful spinach salad, as well as too many fabulous desserts, was served for all to enjoy. Mom was grateful her appetite was in place and she was able to part take in such delicacies. Mom had to laugh at the "high techs" verse "non technicals" when it came to gift giving and receiving. Haustin, Garrett and Emily brought along their instruments to play which is always a blessing to both Mom & Dad. A great time was had by all. Word has it the photos were taken. I am going to try and track some photos down to share with you later.
To add to every one's joy, we just received word on Christmas day that Luke & Janny Reed are expecting their first baby due in July! Luke & Janny were married last May here in Oklahoma. Janny is a great niece of Mom and Dad...daughter of Paul & Shari Morrison and granddaughter of Dad's brother, Ken Morrison. This will be the first great grandchildren of the Morrison clan! How special!!
Mom was in the Infusion Ward when we talked. She was receiving two units of red blood cells and would be there another four hours to receive her antibiotics and fungicide. Now that one of her lines is used to remove excess iron 12 hours a day, things take a bit longer in the Infusion Ward. She has lost some weight but is happy that her eating the last two days has gone well. Her hair s also starting to grow back. She had lost a significant amount during her last bout with high fever and infection. Mom said it is growing in snow white. I bet she looks beautiful! She is sleeping better at night which is great.
All in all, Mom is doing well. Her heart is filled with sweet Christmas blessings and the New Year looks bright!
Friday, December 26, 2008
Wednesday, December 24, 2008
Merry Christmas!
On behalf of Mom and Dad, we want to wish you all a very MERRY CHRISTMAS and a JOYOUS NEW YEAR!
As Mom and Dad reflect back on the year, they both have so much to be thankful for...family, friends, life and all the blessings God has so mercifully and abundantly bestowed upon them. Thank you for being part of their joy. Your support, encouragement and prayers are special gifts from God.
Mom and Dad had a delightful visit with Stasi & her precious family. I will post more on that when I get some photos from Stasi. Mom and Dad are looking forward to spending this Christmas day with Uncle Ray & Aunt Christine. Mom is very pleased with her new every other day schedule in the Infusion Ward. Yesterday, Mom received platelets so she is feeling great! Today should be a delightful day...Christmas with people Mom and Dad love, no trips to the Infusion Ward and knowing they are loved and cared about by so many people.
May God grant each of you a special day today filled with family and/or good friends, sweet memories and joy beyond measure.
As Mom and Dad reflect back on the year, they both have so much to be thankful for...family, friends, life and all the blessings God has so mercifully and abundantly bestowed upon them. Thank you for being part of their joy. Your support, encouragement and prayers are special gifts from God.
Mom and Dad had a delightful visit with Stasi & her precious family. I will post more on that when I get some photos from Stasi. Mom and Dad are looking forward to spending this Christmas day with Uncle Ray & Aunt Christine. Mom is very pleased with her new every other day schedule in the Infusion Ward. Yesterday, Mom received platelets so she is feeling great! Today should be a delightful day...Christmas with people Mom and Dad love, no trips to the Infusion Ward and knowing they are loved and cared about by so many people.
May God grant each of you a special day today filled with family and/or good friends, sweet memories and joy beyond measure.
MERRY CHRISTMAS!!
Saturday, December 20, 2008
Getting Out
Mom is due to be released from the hospital today and should be out by now. Wahoo!! She was so excited about this when I talked with her this afternoon. She plans to head back to the hospital and stay there unless she is heading to the Infusion Ward. With all the colds, flu's and illnesses passing around she doesn't want to take any chances.
Mom is no longer running a fever which is why the doctors have agreed to release her. She will continue to take a multitude of medications, antibiotic and treatments. She is back to being "strapped" to her "friend", the iron taking out machine, for 12 hours a day. Mom is neutrapenic again so she is back to wearing her mask in public and avoiding fresh foods. Her nutrafils are at 0.7. Normal is 2.0 but the doctors tend to give her some "slack" at 1.0 when it comes to what she eats. Having to change what she eats again won't break her heart too bad since she doesn't have much of an appetite and has actually been losing weight. She did have trouble with vomiting last night but feels like that was a "fluke" and shouldn't give her any more trouble. This would be great.
Mom is looking forward to trying a new schedule at the Infusion Ward. They are trying to see if she can maintain only coming in every other day. She will continue to take all medications, just a few more pills and a little less through her IV port. Hopefully this will work and she can start to wean herself away form the Infusion Ward long enough to earn a trip back to the ranch! This would bless her beyond measure.
Mom and Dad are both looking forward to a visit from the Wilson Family. Matt, Stasi, Morgan, Travis, Tyler and Jared are planning to spend the day with Mom & Dad at the apartment tomorrow. How fun!!
Mom mentioned that many of you have sent Christmas cards and letters to the apartment. Thank you! You will never fully know how this blesses both Mom and Dad. May each and everyone of you enjoy this very special holiday season!!
Mom is no longer running a fever which is why the doctors have agreed to release her. She will continue to take a multitude of medications, antibiotic and treatments. She is back to being "strapped" to her "friend", the iron taking out machine, for 12 hours a day. Mom is neutrapenic again so she is back to wearing her mask in public and avoiding fresh foods. Her nutrafils are at 0.7. Normal is 2.0 but the doctors tend to give her some "slack" at 1.0 when it comes to what she eats. Having to change what she eats again won't break her heart too bad since she doesn't have much of an appetite and has actually been losing weight. She did have trouble with vomiting last night but feels like that was a "fluke" and shouldn't give her any more trouble. This would be great.
Mom is looking forward to trying a new schedule at the Infusion Ward. They are trying to see if she can maintain only coming in every other day. She will continue to take all medications, just a few more pills and a little less through her IV port. Hopefully this will work and she can start to wean herself away form the Infusion Ward long enough to earn a trip back to the ranch! This would bless her beyond measure.
Mom and Dad are both looking forward to a visit from the Wilson Family. Matt, Stasi, Morgan, Travis, Tyler and Jared are planning to spend the day with Mom & Dad at the apartment tomorrow. How fun!!
Mom mentioned that many of you have sent Christmas cards and letters to the apartment. Thank you! You will never fully know how this blesses both Mom and Dad. May each and everyone of you enjoy this very special holiday season!!
Wednesday, December 17, 2008
Back in the Hospital...Again
Last night, Mom earned herself another trip to the hospital. On Monday, Mom mentioned while in the Infusion Ward that she wasn't quite feeling herself. A blood culture was taken and after the culture was completed on Tuesday afternoon, Mom found herself on the way to Stanford's Ground F Ward again. The doctors discovered a new bacteria in her blood and now have Mom on antibiotics to try and knock this out of her system before it gets the better of her. When I talked to Mom this evening, she was her usual chipper self and optimistic she would be going home soon. This may be Mom's plan but Mom did confess that this didn't appear to be the doctor's plan. So for now, Mom is at the hospital for an undetermined amount of time.
Currently, Mom has a low grade fever and sores in her mouth but with all praise to God, she is eating well without vomiting or diarrhea. Yeah!! She is walking well and enjoyed two walks in the hospital with Dad. While she is in the hospital, her constant iron reducing "friend" doesn't need to be attached to her. The doctors are working the treatment directly through her IV, along with her fungicide, magnesium, iodine, and a few other medications. As Mom likes to say, "I am a drug manufacturers dream!"
With all this going on, Mom doesn't think she will be going back to the ranch to celebrate Christmas. I tend to agree with her. One would think her "bargaining power" with the doctors would be a lot stronger if she wasn't in the hospital when she was making her request! If Mom happens to be out of he hospital and is unable to travel south, Dad & Mom will be celebrating Christmas with Uncle Ray & Aunt Christine. I have very fond childhood memories of Christmases spent at the Egan's.
On a "my dad is so sweet" note, Dad is handling the Christmas shopping for Mom this year. This is usually Mom's department so you can imagine my surprise when I received a package from Cabelas. Dad took it upon himself to order wonderful gifts for Christmas. When I talked with Stasi tonight, she said her family had also received a package from Cabelas. She was as impressed and touched as I was! Dad blessed us both in a very special way. I am sure when I ask Felicia, she will have the same report. How delightful for us all!! Thank you Dad for blessing us in a very thoughtful and special way this Christmas.
Stasi and her family are planning to visit Mom wherever she may be this coming Sunday. They are planning to make this their Christmas celebration together. I know this will bless both Dad and Mom greatly.
While in the hospital Mom can be reached at 650-498-3081. If you happen to be in the area, she can be found in room Ground F 42. Please do call, write or stop by to say "hello" if you have the opportunity, Mom would be blessed to hear from you. May God bless you and your family abundantly this special holiday season!
Currently, Mom has a low grade fever and sores in her mouth but with all praise to God, she is eating well without vomiting or diarrhea. Yeah!! She is walking well and enjoyed two walks in the hospital with Dad. While she is in the hospital, her constant iron reducing "friend" doesn't need to be attached to her. The doctors are working the treatment directly through her IV, along with her fungicide, magnesium, iodine, and a few other medications. As Mom likes to say, "I am a drug manufacturers dream!"
With all this going on, Mom doesn't think she will be going back to the ranch to celebrate Christmas. I tend to agree with her. One would think her "bargaining power" with the doctors would be a lot stronger if she wasn't in the hospital when she was making her request! If Mom happens to be out of he hospital and is unable to travel south, Dad & Mom will be celebrating Christmas with Uncle Ray & Aunt Christine. I have very fond childhood memories of Christmases spent at the Egan's.
On a "my dad is so sweet" note, Dad is handling the Christmas shopping for Mom this year. This is usually Mom's department so you can imagine my surprise when I received a package from Cabelas. Dad took it upon himself to order wonderful gifts for Christmas. When I talked with Stasi tonight, she said her family had also received a package from Cabelas. She was as impressed and touched as I was! Dad blessed us both in a very special way. I am sure when I ask Felicia, she will have the same report. How delightful for us all!! Thank you Dad for blessing us in a very thoughtful and special way this Christmas.
Stasi and her family are planning to visit Mom wherever she may be this coming Sunday. They are planning to make this their Christmas celebration together. I know this will bless both Dad and Mom greatly.
While in the hospital Mom can be reached at 650-498-3081. If you happen to be in the area, she can be found in room Ground F 42. Please do call, write or stop by to say "hello" if you have the opportunity, Mom would be blessed to hear from you. May God bless you and your family abundantly this special holiday season!
Sunday, December 7, 2008
Life is Good
Simple things can make life so good. A good meal, restful sleep, delightful company and good news from home all help to make life seem pleasant and more joyful. This is how things are with Mom.
Mom is getting good sleep now that she is taking her iron removal treatment during the day. When she took it at night, she worried that she would pull it out and this caused her not to sleep well. So now she starts it while in the Infusion Ward between 7:00 & 8:00 AM and carries her 2.5 pound friend with her until the alarm to stop the treatment goes off between 7:00 & 8:00 PM. There have been a few side effects that are somewhat unpleasant but Mom is bearing them well. One side effect is that she is hungry all the time. This is quite a change for Mom. She is actually eat a lot which is a good thing.
Mom is improving in her need for transfusions. She is only taking blood about once a week and platelets every 5 to 7 days. This is a very good thing. She may have need of her daily treatment for the fungus on her lungs for as long as another year. This means two hours in the Infusion Ward daily just for the fungicide and then any additional time for transfusions when needed since they can't be given at the same time as her fungicide. Mom also takes a pill for the fungus at night. Mom is hoping to meet with Dr. Ho, the infectious disease doctor, this week to "beg" a small trip home for Christmas. Mom is hoping to convince Dr. Ho that for two to three days she could take pills instead of IV and pills. If this comes to pass, it will truly be of the Lord since Dr. Ho feels strongly that IV is the best way to receive this type of medication. Mom will be happy with whatever Dr. Ho decides. It is because of Dr. Ho (and God) that Mom's lungs are still working...after all, breathing is kind of important!
When I asked Mom how she was doing over all, she said all is well aside from the opportunity to shop for Christmas. Mom loves to shop! Dad has tried to take her three different times but she finds that she can only last for a brief time. She just gets too tired. She also worries about catching a cold from someone while out in the crowds. I forgot to mention to her that there is always Internet shopping but knowing Mom this just wouldn't be the same. She likes to touch what she buys, find a bargain and be out & about. Maybe next year.
Mom was very excited about a new Chinese restaurant that she tried with Dad, Uncle Ray & Aunt Christine. After Aunt Christine had taken a fall and found herself in the emergency ward earlier in the day, no one felt quite like cooking. With all praise to God, Aunt Christine only sustained a bump on the head and will be fine. She is also doing a little better everyday as she recovers from chemotherapy. Both Mom and Aunt Christine are glad to no longer be neutrapenic and able to eat fresh foods. Something to celebrate! While at the restaurant, Mom said she had one of the tastiest dishes she has had in a long time. It was grilled shrimp with a mayo sauce, uncooked apples and cooked, candied walnuts. She loved it! They also had chow mien and mu-shu pork. Mom was very pleased and said they would go to this restaurant again. Good company and good food...life is good.
Things are going well at the ranch. Mom said that Mark & Felicia hosted a Women's Pheasant Hunt for the Department of Fish & Game this last weekend. Over 90 women attended this event to promote good sportsmanship, take classes in archery & skeet shooting, along with pheasant hunting. Felicia cooked for all the people, Mark fixed things, drove folks around and over saw things, while their children helped out were needed. Just knowing that the ranch is being used for events like this truly blesses Mom.
Tonight Dad was cooking Mom another one of his wonderful steak dinners. Mom said that Dad has a system when it comes to meals and steak really works. Sounds delicious to me! Both Mom and Dad are doing well as anyone could hope for. They are enjoying the simple things and grateful for all improvements. A good reminder for me to slow down and enjoy the simple, sweet things in my life as well.
Mom is getting good sleep now that she is taking her iron removal treatment during the day. When she took it at night, she worried that she would pull it out and this caused her not to sleep well. So now she starts it while in the Infusion Ward between 7:00 & 8:00 AM and carries her 2.5 pound friend with her until the alarm to stop the treatment goes off between 7:00 & 8:00 PM. There have been a few side effects that are somewhat unpleasant but Mom is bearing them well. One side effect is that she is hungry all the time. This is quite a change for Mom. She is actually eat a lot which is a good thing.
Mom is improving in her need for transfusions. She is only taking blood about once a week and platelets every 5 to 7 days. This is a very good thing. She may have need of her daily treatment for the fungus on her lungs for as long as another year. This means two hours in the Infusion Ward daily just for the fungicide and then any additional time for transfusions when needed since they can't be given at the same time as her fungicide. Mom also takes a pill for the fungus at night. Mom is hoping to meet with Dr. Ho, the infectious disease doctor, this week to "beg" a small trip home for Christmas. Mom is hoping to convince Dr. Ho that for two to three days she could take pills instead of IV and pills. If this comes to pass, it will truly be of the Lord since Dr. Ho feels strongly that IV is the best way to receive this type of medication. Mom will be happy with whatever Dr. Ho decides. It is because of Dr. Ho (and God) that Mom's lungs are still working...after all, breathing is kind of important!
When I asked Mom how she was doing over all, she said all is well aside from the opportunity to shop for Christmas. Mom loves to shop! Dad has tried to take her three different times but she finds that she can only last for a brief time. She just gets too tired. She also worries about catching a cold from someone while out in the crowds. I forgot to mention to her that there is always Internet shopping but knowing Mom this just wouldn't be the same. She likes to touch what she buys, find a bargain and be out & about. Maybe next year.
Mom was very excited about a new Chinese restaurant that she tried with Dad, Uncle Ray & Aunt Christine. After Aunt Christine had taken a fall and found herself in the emergency ward earlier in the day, no one felt quite like cooking. With all praise to God, Aunt Christine only sustained a bump on the head and will be fine. She is also doing a little better everyday as she recovers from chemotherapy. Both Mom and Aunt Christine are glad to no longer be neutrapenic and able to eat fresh foods. Something to celebrate! While at the restaurant, Mom said she had one of the tastiest dishes she has had in a long time. It was grilled shrimp with a mayo sauce, uncooked apples and cooked, candied walnuts. She loved it! They also had chow mien and mu-shu pork. Mom was very pleased and said they would go to this restaurant again. Good company and good food...life is good.
Things are going well at the ranch. Mom said that Mark & Felicia hosted a Women's Pheasant Hunt for the Department of Fish & Game this last weekend. Over 90 women attended this event to promote good sportsmanship, take classes in archery & skeet shooting, along with pheasant hunting. Felicia cooked for all the people, Mark fixed things, drove folks around and over saw things, while their children helped out were needed. Just knowing that the ranch is being used for events like this truly blesses Mom.
Tonight Dad was cooking Mom another one of his wonderful steak dinners. Mom said that Dad has a system when it comes to meals and steak really works. Sounds delicious to me! Both Mom and Dad are doing well as anyone could hope for. They are enjoying the simple things and grateful for all improvements. A good reminder for me to slow down and enjoy the simple, sweet things in my life as well.
Wednesday, December 3, 2008
Doing the Next Thing...
This week has been filled with many ups and downs as Mom moves along with another new medical plan. Doing the next thing this time means a 12 hour nightly treatment to help reduce the iron in her system. How long will this new plan go on? According to Dr. Shrier, who using his wonderful "bedside manner", told Mom that she would need to do this everyday until she had gone two years without a transfusion...which means forever. After Mom attended her instructional class on how to use and care for her iron removing device (surely this has some official medical term but I am clueless as to what it is) on Monday, she found herself feeling overwhelmed and somewhat depressed. Fortunately, this soon passed and by Tuesday afternoon Mom was back up and ready to tackle this new project with the hope of moving forward to better health. Although Mom has become accustomed to her bright, radiant yellow glow, she is hopeful it will soon be a thing of the past. Mom is very excited that she has experienced no side affects and her new "friend" and constant nighttime companion only weighs 2.5 pounds.
Mom has been blessed by the way Dad has taken care of her as she found herself facing this new challenge. She said that he has treated her like a queen and has made every effort to please her. When I talked with her last night, Dad was in the process of making her a delightful steak dinner complete with a salad. Mom is so grateful to be eating fresh fruits and vegetables again!
As for the rest of her body...Mom still needs regular blood and platelet transfusions but not quite as often. In October she had twice as many of each than she did in November. This is encouraging. She is still "attached" to the Infusion Ward due to her daily IV treatment of fungicide for the fungus on her lungs. There are still nodules on her spleen and liver. Hopefully there will be improvement with these soon. She has not been scheduled for another MRI to recheck how things look but knows there is one in her near future.
As long as Mom has to be in the Infusion Ward daily, she will not be able to return back to the ranch even for a brief visit. It is hard to believe that Mom left the ranch seven months ago and has not been back since. She was hoping to be home for Christmas. She is not counting on it but would be very happy if God chose to bless her with a trip back to the ranch, no matter how brief, just the same.
We all appreciate your prayers on Mom and Dad's behalf. Thank you for your support, encouragement and love.
Mom has been blessed by the way Dad has taken care of her as she found herself facing this new challenge. She said that he has treated her like a queen and has made every effort to please her. When I talked with her last night, Dad was in the process of making her a delightful steak dinner complete with a salad. Mom is so grateful to be eating fresh fruits and vegetables again!
As for the rest of her body...Mom still needs regular blood and platelet transfusions but not quite as often. In October she had twice as many of each than she did in November. This is encouraging. She is still "attached" to the Infusion Ward due to her daily IV treatment of fungicide for the fungus on her lungs. There are still nodules on her spleen and liver. Hopefully there will be improvement with these soon. She has not been scheduled for another MRI to recheck how things look but knows there is one in her near future.
As long as Mom has to be in the Infusion Ward daily, she will not be able to return back to the ranch even for a brief visit. It is hard to believe that Mom left the ranch seven months ago and has not been back since. She was hoping to be home for Christmas. She is not counting on it but would be very happy if God chose to bless her with a trip back to the ranch, no matter how brief, just the same.
We all appreciate your prayers on Mom and Dad's behalf. Thank you for your support, encouragement and love.
Wednesday, November 26, 2008
Many Blessings
We want to wish you all a very Happy Thanksgiving! In the Morrison family, we all have so much to be thankful about. God continues to keep His hand of blessing upon us and to meet all of are needs. So that mean that life is perfect? No, it is not but we serve a perfect God who loves us all dearly. We are blessed!
Mom is delighted to still be out of the hospital and doing as well as anyone with Aplastic Anemia could hope to be doing. She continues to make her daily trips to the Infusion Ward for her fungicide and transfusions. She had been able to go an extra day on both her blood and platelets before needing them again. This is a good thing. Mom is as yellow as can be due to her high iron levels. The doctors will begin treatment to try and decrease her iron levels the beginning of December. Mom said this treat will set her back a bit but should put her in a better state once the treatment is complete. Mom is optimistic as usual. It is because of her positive attitude that Mom's illness hasn't got the best of her. Surely her ray of sunshine outlook on life is what makes this all bearable for Dad as well.
Mom recently was staying with the Egan's while Dad had business in Santa Barbara. Uncle Ray took her back and forth to the Infusion Ward and was Mom's "hero" while Dad was away. Mom enjoyed her time with Christine & Ray and is grateful for their hospitality. Dad and Mom will be going to the Egan's for Thanksgiving Dinner as soon as Mom finishes up at the Infusion Ward. Mom is looking forward to sweet fellowship along with enjoying the entire meal since she is not neutrapenic at this time. Yeah!
May each of you delight in this Thanksgiving as you count your blessings. May your day be abundantly blessed and filled with overflowing joy. Many Blessings!
Mom is delighted to still be out of the hospital and doing as well as anyone with Aplastic Anemia could hope to be doing. She continues to make her daily trips to the Infusion Ward for her fungicide and transfusions. She had been able to go an extra day on both her blood and platelets before needing them again. This is a good thing. Mom is as yellow as can be due to her high iron levels. The doctors will begin treatment to try and decrease her iron levels the beginning of December. Mom said this treat will set her back a bit but should put her in a better state once the treatment is complete. Mom is optimistic as usual. It is because of her positive attitude that Mom's illness hasn't got the best of her. Surely her ray of sunshine outlook on life is what makes this all bearable for Dad as well.
Mom recently was staying with the Egan's while Dad had business in Santa Barbara. Uncle Ray took her back and forth to the Infusion Ward and was Mom's "hero" while Dad was away. Mom enjoyed her time with Christine & Ray and is grateful for their hospitality. Dad and Mom will be going to the Egan's for Thanksgiving Dinner as soon as Mom finishes up at the Infusion Ward. Mom is looking forward to sweet fellowship along with enjoying the entire meal since she is not neutrapenic at this time. Yeah!
May each of you delight in this Thanksgiving as you count your blessings. May your day be abundantly blessed and filled with overflowing joy. Many Blessings!
Saturday, November 8, 2008
Doing Fine
Mom has been out of the hospital for a while now. She is grateful to be back at the apartment and back to her "normal" routine of daily trips to the Infusion Ward.
After seeing Dr. Shrier on Tuesday, the plan is to try and remove the excess iron in her body. Mom's kidneys and liver are struggling and being damaged by all the extra iron Mom has received through her blood transfusions. At this time, Mom appears to be making some red blood cells. This is quite the praise! Mom is not making any platelets so transfusions are still needed. She is also still receiving medication to combat the fungus on her lungs. Mom is doing a lot more sleeping these days, although her spirit is still positive. Dr. Shrier told my parents that as long as Mom is positive, they will do all they can to prolong her life.
There are many things that we take for granted each day. Let's take eating for one. For most of us, we just get up and have breakfast each morning. The blessings in this are that God has provided food for us to eat and we feel well enough to eat. God is gracious to provide Mom plenty of food to eat but she struggles to get the eating done. She has to take medication for nauseousness and wait for the medication to take affect whenever she is going to eat. Planning ahead is key for Mom to get food in her system! She usually sleeps while waiting for the right time to eat.
Dad is hanging in there and is grateful for all the little blessings that come their way. He is wonderful care giver for Mom and a loving husband. They are blessed to have each other.
Thank you for your concern of Mom. Please do write or call if she comes to mind. The address and phone number you can reach her at are posted at the top of this page. Mom would be blessed to hear from you. We also thank you for your prayers.
After seeing Dr. Shrier on Tuesday, the plan is to try and remove the excess iron in her body. Mom's kidneys and liver are struggling and being damaged by all the extra iron Mom has received through her blood transfusions. At this time, Mom appears to be making some red blood cells. This is quite the praise! Mom is not making any platelets so transfusions are still needed. She is also still receiving medication to combat the fungus on her lungs. Mom is doing a lot more sleeping these days, although her spirit is still positive. Dr. Shrier told my parents that as long as Mom is positive, they will do all they can to prolong her life.
There are many things that we take for granted each day. Let's take eating for one. For most of us, we just get up and have breakfast each morning. The blessings in this are that God has provided food for us to eat and we feel well enough to eat. God is gracious to provide Mom plenty of food to eat but she struggles to get the eating done. She has to take medication for nauseousness and wait for the medication to take affect whenever she is going to eat. Planning ahead is key for Mom to get food in her system! She usually sleeps while waiting for the right time to eat.
Dad is hanging in there and is grateful for all the little blessings that come their way. He is wonderful care giver for Mom and a loving husband. They are blessed to have each other.
Thank you for your concern of Mom. Please do write or call if she comes to mind. The address and phone number you can reach her at are posted at the top of this page. Mom would be blessed to hear from you. We also thank you for your prayers.
Tuesday, October 28, 2008
Praise Report
With all praise to God, we are grateful to report that Mom received her new IV port yesterday and the surgery was successful. Thank you, God! Mom is in a lot of pain when she isn't on Vicadan, so she has made Vicadan her new best friend. When I talked with her this morning she was "feeling no pain" and was quite joyful. The doctors anticipate allowing her to leave the hospital sometime tomorrow. Mom is thrilled by this thought.
Unfortunately, the infection the doctors hoped to clear up by removing her last port did not work. Mom still has an infection somewhere in her body that is undetected. She currently has lesions on her spleen, liver and lungs along with the fungus on her lungs. She runs fevers most nights which need to be monitored diligently. Mom has been eating okay with no diarrhea or vomiting. This is very good.
Dad's trip to Mexico was successful. I had not realized that he had taken a "partner in crime' in join in his adventure. Ray Egan, Mom's brother in law, went with Dad. They arrived in Mexico on Tuesday and had dinner with friends. Then on Wednesday morning they headed north and returned on Saturday. It must have been lots of fun for both men as Uncle Ray had lots of new technology for them to try out along the way. I am sure that Dad enjoyed his time with Uncle Ray greatly. They have been good friends for years! Mom was very glad to see Dad when he returned.
All is right in Mom's world today, praise the Lord. Thank you for your prayers and support. May your day be abundantly blessed.
Unfortunately, the infection the doctors hoped to clear up by removing her last port did not work. Mom still has an infection somewhere in her body that is undetected. She currently has lesions on her spleen, liver and lungs along with the fungus on her lungs. She runs fevers most nights which need to be monitored diligently. Mom has been eating okay with no diarrhea or vomiting. This is very good.
Dad's trip to Mexico was successful. I had not realized that he had taken a "partner in crime' in join in his adventure. Ray Egan, Mom's brother in law, went with Dad. They arrived in Mexico on Tuesday and had dinner with friends. Then on Wednesday morning they headed north and returned on Saturday. It must have been lots of fun for both men as Uncle Ray had lots of new technology for them to try out along the way. I am sure that Dad enjoyed his time with Uncle Ray greatly. They have been good friends for years! Mom was very glad to see Dad when he returned.
All is right in Mom's world today, praise the Lord. Thank you for your prayers and support. May your day be abundantly blessed.
Saturday, October 25, 2008
Staying the Course
Mom is very excited that Kathie Laurence will be keeping her company this weekend at the hospital. Mom delights in Kathie and is always blessed to spend time with her. Dad is south of the border for the present. He has gone to Puerta Vallarta to pick up a car that he and Mom bought some time ago. Dad is probably having a great time. He has always enjoyed any time spent in Mexico. He also loves road trips and exploring. Surely he is taking comfort that Mom is in great hands enjoying wonderful company with Kathie.
When I talked last with Mom, she was doing well and staying the current course. The tentative plan is to try and put back in another "permanent" IV port on Monday, Lord willing. Mom is anticipating being able to return to the apartment at that time. This would bring Mom great joy.
We never know what a day will bring forth. We take comfort that God knows the future and has all our best interests in mind. May He be glorified even through Mom's illness. Thank you for your prayers, support and encouragement. Many blessings!
When I talked last with Mom, she was doing well and staying the current course. The tentative plan is to try and put back in another "permanent" IV port on Monday, Lord willing. Mom is anticipating being able to return to the apartment at that time. This would bring Mom great joy.
We never know what a day will bring forth. We take comfort that God knows the future and has all our best interests in mind. May He be glorified even through Mom's illness. Thank you for your prayers, support and encouragement. Many blessings!
Tuesday, October 21, 2008
A New Plan
The doctors are trying something new to help Mom overcome all the trouble she has been having with infections. Yesterday, the doctors removed Mom's IV port that was connected through her chest to her heart. This was a last resort but they are hopeful that by removing the port they can finally get the upper hand. Mom has a temporary port in her arm. The plan is to use this until Thursday or Friday and if all is well, the doctors will attempt to put another IV port in the other side of her heart. To prepare for the removal of the port, Mom received two units of platelets on Sunday and one before they removed the port yesterday. She also received a unit of red blood cells each day for the last three days. It seemed to have worked. She was able to have the port removed with minimal complications. When I talked with Mom yesterday afternoon she was "kind of happy" thanks to some Vicadan and she was delighted that all had gone well.
Mom is neutrapenic again so she has been moved back into a more isolated ward. She now in room 41 and can be reached at 650-498-3080. I know she would enjoy hearing from you if you have the opportunity to give her a call.
It is funny at times how one will amuse themselves when forced to find joy in uncomfortable situations. Mom has now named her portable IV infusion carrier "Mabel". She figured that since Mabel must go everywhere with her and Mom is attached to Mabel 24/7, she might as well look at her as a friend. She is also picking up on a few new hospital terminology tidbits. When a nurse came in looking for the "COW", all Mom could think was that the "COW" must be turned out with the bulls like they are at the ranch. Now Mom knows that in a hospital setting, a "COW" is the Computer On Wheels. You learn something new everyday.
Dad had a good time down at the ranch this past weekend. Mark had plans to be away so Dad returned to "hold down the fort". With Mom getting such wonderful care in the hospital, it was a perfect time for Dad to get away for a moment. All went well for both Mom and Dad while apart, although Mom was delighted to have Dad return.
Mom was doing good when I talked with her. She is her forever optimistic self and is finding joy and blessings in all she can. We will continue to pray that she can stay the course and her port can be reinserted. Thank you for your prayers. Many Blessings!
Mom is neutrapenic again so she has been moved back into a more isolated ward. She now in room 41 and can be reached at 650-498-3080. I know she would enjoy hearing from you if you have the opportunity to give her a call.
It is funny at times how one will amuse themselves when forced to find joy in uncomfortable situations. Mom has now named her portable IV infusion carrier "Mabel". She figured that since Mabel must go everywhere with her and Mom is attached to Mabel 24/7, she might as well look at her as a friend. She is also picking up on a few new hospital terminology tidbits. When a nurse came in looking for the "COW", all Mom could think was that the "COW" must be turned out with the bulls like they are at the ranch. Now Mom knows that in a hospital setting, a "COW" is the Computer On Wheels. You learn something new everyday.
Dad had a good time down at the ranch this past weekend. Mark had plans to be away so Dad returned to "hold down the fort". With Mom getting such wonderful care in the hospital, it was a perfect time for Dad to get away for a moment. All went well for both Mom and Dad while apart, although Mom was delighted to have Dad return.
Mom was doing good when I talked with her. She is her forever optimistic self and is finding joy and blessings in all she can. We will continue to pray that she can stay the course and her port can be reinserted. Thank you for your prayers. Many Blessings!
Tuesday, October 14, 2008
In Again
Mom has a new phone number as of last night. This is how she told me she was back in the hospital again. Ugh! I was sorry to hear when I talked with Mom tonight that she was back in the hospital and had such a rough day.
Yesterday, while in the Infusion Ward, Mom started to spike a fever while receiving platelets. While her temperature continued to climb, she began to throw up blood. Not a good sign. This was an automatic trip back to her beloved Ground F Ward at Stanford Hospital! Although they have not pinpointed where the infection that is causing these new symptoms is located, the doctor began antibiotics immediately.
Mom was very transparent tonight on how her day had gone thus far. I appreciate Mom sharing with me how things really are with her. Mom said that today was one of the roughest days that she has had since she first was diagnosed with Aplastic Anemia. This is from a woman who has survived three rounds of IV chemotherapy so it must have been a bad day! Mom said that she didn't eat dinner last night and wasn't allowed to eat this morning because of the tests that need to be run on an empty stomach. Unfortunately, the tests were not able to be run as planned first thing in the morning and were finally done in the afternoon. After spending 1.5 hours in an MRI tube among other tests, Mom found herself "undone". By the time her first bag of red blood cells had been given to her, she had "had it". She found herself an emotional wreck, complete with lots of tears. She even had a headache and Mom rarely suffers from a headache. Mom told the nurse bringing in the second bag of blood that it would just have to wait...she couldn't take anymore at that time. Dad arrived back in time with cheese and soup to "save" his depressed, starving wife and encourage her to stay the course. By the time I talked with Mom, she was pleased that she could talk without crying and was working on becoming her optimistic self again. Food and encouragement are good things! Mom was still due for another test tonight to check out the condition of the fungus in her lungs and liver, so Mom's day wasn't over yet. Mom had no results from any of her tests but hopes to have more information when the doctors make their morning rounds.
Mom said this was the first time in all her illness that she questioned if everything was worth the fight. She is grieved by what she perceives she is put her family through. I told her that she is worth the effort and we all love her dearly. No need to worry about the rest of us!
Mom had a rough day but told me that she knows that tomorrow will be better. How I love the "Pollyanna" in my precious mother! If you would like to call and encourage Mom, you can reach her at 650-498-3061. She is blessed to be in room 21 on Ground F Ward. Thank you for remembering Mom in your thoughts and prayers. You are a blessing to us all.
Yesterday, while in the Infusion Ward, Mom started to spike a fever while receiving platelets. While her temperature continued to climb, she began to throw up blood. Not a good sign. This was an automatic trip back to her beloved Ground F Ward at Stanford Hospital! Although they have not pinpointed where the infection that is causing these new symptoms is located, the doctor began antibiotics immediately.
Mom was very transparent tonight on how her day had gone thus far. I appreciate Mom sharing with me how things really are with her. Mom said that today was one of the roughest days that she has had since she first was diagnosed with Aplastic Anemia. This is from a woman who has survived three rounds of IV chemotherapy so it must have been a bad day! Mom said that she didn't eat dinner last night and wasn't allowed to eat this morning because of the tests that need to be run on an empty stomach. Unfortunately, the tests were not able to be run as planned first thing in the morning and were finally done in the afternoon. After spending 1.5 hours in an MRI tube among other tests, Mom found herself "undone". By the time her first bag of red blood cells had been given to her, she had "had it". She found herself an emotional wreck, complete with lots of tears. She even had a headache and Mom rarely suffers from a headache. Mom told the nurse bringing in the second bag of blood that it would just have to wait...she couldn't take anymore at that time. Dad arrived back in time with cheese and soup to "save" his depressed, starving wife and encourage her to stay the course. By the time I talked with Mom, she was pleased that she could talk without crying and was working on becoming her optimistic self again. Food and encouragement are good things! Mom was still due for another test tonight to check out the condition of the fungus in her lungs and liver, so Mom's day wasn't over yet. Mom had no results from any of her tests but hopes to have more information when the doctors make their morning rounds.
Mom said this was the first time in all her illness that she questioned if everything was worth the fight. She is grieved by what she perceives she is put her family through. I told her that she is worth the effort and we all love her dearly. No need to worry about the rest of us!
Mom had a rough day but told me that she knows that tomorrow will be better. How I love the "Pollyanna" in my precious mother! If you would like to call and encourage Mom, you can reach her at 650-498-3061. She is blessed to be in room 21 on Ground F Ward. Thank you for remembering Mom in your thoughts and prayers. You are a blessing to us all.
Wednesday, October 8, 2008
Rollercoaster
I am sorry it has been so long since I have blogged about Mom. Everyday life chaos and the difficulty of dial-up have hindered me greatly. Mom is doing fine as can be expected with such life threatening conditions. Over the last few weeks Mom has been on a roller coaster finding herself in and out of the hospital. Currently Mom is back at the apartment, yeah!
Mom has been enjoying eating as she chooses, although she is isn't eating out much as she thought she would do once she was no longer neutrapenic. The last two times she has eaten out the food "has not agreed" with her. So Dad has been blessing her with his home cooked meals, thanks to wonderful food from Safeway. Mom is very pleased with this situation. Fortunately, Mom is no longer throwing up all the time and has started to put some weight back one. She isn't very happy about the weight but the doctors are very happy.
Mom continues to need red blood cells and platelets regularly. She is also going to remain up near Standford for at least the next two months due to the treatment she is receiving for the fungus in her lungs. Until the fungus is under control on her lungs, all the doctors can do is to continue monitoring her liver. The infection in her port seems to be taken care of which is a praise to God that the line didn't need to be removed. The doctor who inserted her line said it was one of the most difficult that he has ever put in and it was even on the "easy" side. He said that once removed, it wouldn't be able to be put back in. With this in mind, Mom is overjoyed that her line is currently "safe".
Mom is doing well with her daily trips to the Infusion Ward. She is sorry that her favorite nurse, Linda, recently broke her leg and is off recovering. Mom misses Linda greatly. Mom spends anywhere from 2.5 hours to 7 hours per day in the Infusion Ward depending on what is needed that day. Makes the 2.5 hour days seem like a treat!
Dad is hanging in there with his loving care of Mom. Mom does think he needs "a break" and wishes there was more she could do to bless him and make this situation easier. They really do love each other a lot!
Thank you for all your prayers, support and encouragement. Mom is grateful and appreciates you all. Please don't hesitate to call or write Mom when she comes to mind. You would make her day.
Many Blessings!
Mom has been enjoying eating as she chooses, although she is isn't eating out much as she thought she would do once she was no longer neutrapenic. The last two times she has eaten out the food "has not agreed" with her. So Dad has been blessing her with his home cooked meals, thanks to wonderful food from Safeway. Mom is very pleased with this situation. Fortunately, Mom is no longer throwing up all the time and has started to put some weight back one. She isn't very happy about the weight but the doctors are very happy.
Mom continues to need red blood cells and platelets regularly. She is also going to remain up near Standford for at least the next two months due to the treatment she is receiving for the fungus in her lungs. Until the fungus is under control on her lungs, all the doctors can do is to continue monitoring her liver. The infection in her port seems to be taken care of which is a praise to God that the line didn't need to be removed. The doctor who inserted her line said it was one of the most difficult that he has ever put in and it was even on the "easy" side. He said that once removed, it wouldn't be able to be put back in. With this in mind, Mom is overjoyed that her line is currently "safe".
Mom is doing well with her daily trips to the Infusion Ward. She is sorry that her favorite nurse, Linda, recently broke her leg and is off recovering. Mom misses Linda greatly. Mom spends anywhere from 2.5 hours to 7 hours per day in the Infusion Ward depending on what is needed that day. Makes the 2.5 hour days seem like a treat!
Dad is hanging in there with his loving care of Mom. Mom does think he needs "a break" and wishes there was more she could do to bless him and make this situation easier. They really do love each other a lot!
Thank you for all your prayers, support and encouragement. Mom is grateful and appreciates you all. Please don't hesitate to call or write Mom when she comes to mind. You would make her day.
Many Blessings!
Saturday, September 13, 2008
Trying Something New
Mom is still in the hospital and will remain there indefinitely as of now. When I talked with Mom this afternoon, she was very excited to tell me that the doctors are trying something new. They are trying to handle an infection that they think may be in her IV port/tube that may be the source of some of her troubles. They are giving her a solution of 1/2 heparin (diluted) and 1/2 antibiotics. Hopefully, this will be a solution to some of the problems she is having with Septicemia. Only time will tell, but Mom is encouraged.
Yesterday Mom received more red blood cells. Mom was delighted to tell me that her white blood cells have increased to a level where she is no longer considered neutrapenic. Since her levels are barely at this level, the doctors are going to "stay the course" with regards to her diet for now. How Mom longs for a salad! Hopefully, a salad and fresh fruit will be in her near future.
Dad arrived back from the bull sale last night and was very pleased with how things went for him while there. He spent this morning visiting with Mom and then at Mom's encouragement, headed back to the ranch until Monday morning. He has a lot of things that need his attention there and Mom is doing great in the hospital. I joked around with Mom how it must be fun to watch what she wanted to watch, nap when she felt like it and eat how much she wanted to eat without Dad keeping track of her. The equivalent of "running with scissors"! She found that very amusing.
Mom is doing well today. She is very up beat and finding lots of things to be grateful about. I appreciate her ability to look at the bright side of things. Thank you for your prayers ad support.
Yesterday Mom received more red blood cells. Mom was delighted to tell me that her white blood cells have increased to a level where she is no longer considered neutrapenic. Since her levels are barely at this level, the doctors are going to "stay the course" with regards to her diet for now. How Mom longs for a salad! Hopefully, a salad and fresh fruit will be in her near future.
Dad arrived back from the bull sale last night and was very pleased with how things went for him while there. He spent this morning visiting with Mom and then at Mom's encouragement, headed back to the ranch until Monday morning. He has a lot of things that need his attention there and Mom is doing great in the hospital. I joked around with Mom how it must be fun to watch what she wanted to watch, nap when she felt like it and eat how much she wanted to eat without Dad keeping track of her. The equivalent of "running with scissors"! She found that very amusing.
Mom is doing well today. She is very up beat and finding lots of things to be grateful about. I appreciate her ability to look at the bright side of things. Thank you for your prayers ad support.
Thursday, September 11, 2008
Back in the Hospital
Wow! What a surprise to find out tonight that Mom is back in the hospital! When I last talked with Mom, she was practically convinced she was cured and was feeling great. (Mom's never ending optimism that has blessed her thus far. PTL!) Unfortunately, with both Septicemia and Aplastic Anemia, conditions change at a moments notice. This time the trigger was 103 degree temperature. Not a good sign. So Mom is now back in the hospital where the Stanford Staff on F Ground are taking fabulous care of her. If you would like to contact Mom, you may reach her at 650-498-3080.
Dad was able to be with Mom when she was admitted but is now at the Tahama Bull Sale until Friday. In the cattle business, this is a "must attend" when it comes to buying bulls on the West Coast. Mom is glad to be back where they take such great care of her...all needs met, room service, etc....so Dad could go to the sale. As much as she loves being with Dad all the time, she knows that it is good for both of them if once in a while Dad gets to have a break from the rigorous routine of Mom's medical needs. Mom is feeling a lot better now that they have gotten her temperature regulated and has received more platelets. All seems to be right with the world as of tonight.
Dad was able to be with Mom when she was admitted but is now at the Tahama Bull Sale until Friday. In the cattle business, this is a "must attend" when it comes to buying bulls on the West Coast. Mom is glad to be back where they take such great care of her...all needs met, room service, etc....so Dad could go to the sale. As much as she loves being with Dad all the time, she knows that it is good for both of them if once in a while Dad gets to have a break from the rigorous routine of Mom's medical needs. Mom is feeling a lot better now that they have gotten her temperature regulated and has received more platelets. All seems to be right with the world as of tonight.
Monday, September 8, 2008
Sitting Pretty
Tonight Mom is "sitting pretty" back at the apartment. Wahoo!! When Stasi talked with her, Mom was so excited about being out of the hospital that she really didn't want to talk about her numbers or how things are going with walking, eating, etc. Who can blame her? Sometimes we all just have to "be" for a while. Tomorrow Mom has her appointment with Dr. Shrier and that should give some more clarity to what Mom has been dealing with as of late.
We are grateful for all the prayers said on Mom's behalf. Mom is grateful for every new day that the Lord chooses to give her. Her family is too.
We are grateful for all the prayers said on Mom's behalf. Mom is grateful for every new day that the Lord chooses to give her. Her family is too.
Saturday, September 6, 2008
Very Surprised
Mom found herself very surprised yesterday afternoon when she awoke surrounded by paramedics and nurses calling out her name. Last she remembered was that she was sitting in a chair in the Lobby of the Infusion Ward and she felt like she was going to fall. That is all she remembers. Apparently, Mom passed out and is now in the hospital. She is suffering from Septicemia. This is a very dangerous condition and we praise God that the doctors have been able to "head this off at the pass" with medication. Mom claims she is feeling "like a million dollars" today compared to yesterday but Dad is quick to add that Mom is still struggling with Septicemia.
Mom said that yesterday she was having trouble seeing, talking and thinking. She said this has all been rough on Dad but he is doing better this morning. Mom has had a fever since last night and continues to take medication to stop vomiting. She is still not eating much and has lost another pound and now weighs 139 pounds. This is giving the doctors reason to be concerned so they are monitoring her diet intake closely. She "dumped" most her platelets and red blood cells yesterday and will be receiving transfusion of both sometime today. Mom cannot say enough to praise all the people who donate the life giving gift of platelets and blood. Thank you! As I was talking with Mom on the phone, someone came in and said something about Mom having an EKG today. Mom cut our phone call short so I can't yet confirm this. All in all, there is a lot to praise God about. Mom fells better and is in the best of care at Stanford hospital.
Mom is taking phone calls on her cell 805-235-6794. Please feel free to give her a quick call. Thank you for your concern and prayers. May your day be blessed.
Mom said that yesterday she was having trouble seeing, talking and thinking. She said this has all been rough on Dad but he is doing better this morning. Mom has had a fever since last night and continues to take medication to stop vomiting. She is still not eating much and has lost another pound and now weighs 139 pounds. This is giving the doctors reason to be concerned so they are monitoring her diet intake closely. She "dumped" most her platelets and red blood cells yesterday and will be receiving transfusion of both sometime today. Mom cannot say enough to praise all the people who donate the life giving gift of platelets and blood. Thank you! As I was talking with Mom on the phone, someone came in and said something about Mom having an EKG today. Mom cut our phone call short so I can't yet confirm this. All in all, there is a lot to praise God about. Mom fells better and is in the best of care at Stanford hospital.
Mom is taking phone calls on her cell 805-235-6794. Please feel free to give her a quick call. Thank you for your concern and prayers. May your day be blessed.
Monday, September 1, 2008
Out and About
Today is Dad's birthday. HAPPY BIRTHDAY DAD! After a delightful time of talking with all his Oklahoma grandchildren, Dad and I agreed that birthday's aren't quite what they used to be when we were young. Time is flying by too fast and the birthday's seem to be coming too often. Nevertheless, I did wish my dad God's best on his special day and hoped it would be very enjoyable. Dad thought it was going to be and was looking forward to celebrating with Mom.
For the last few days, Dad and Mom have been going on outings. Today the plan is to a visit a local museum. Dad and Mom both enjoy museums of most any kind. Mom has been feeling well enough to get out and about. Praise the Lord! Mom and Dad have been to visit Mom's sister again, to Mom's favorite bookstore and on a drive to Half Moon Bay. Day is loving this new found opportunity for adventure. Mom appreciates seeing more than the hospital, Infusion Ward and apartment. How wonderful they can "travel" as they so both love doing! Dad said it makes the day go faster and gives Mom something to look forward to. It does sound like Dad will have a great birthday!
Mom is doing as well as anyone with Aplastic Anemia can expect to be doing. Each day is a gift from God and we praise Him for it.
For the last few days, Dad and Mom have been going on outings. Today the plan is to a visit a local museum. Dad and Mom both enjoy museums of most any kind. Mom has been feeling well enough to get out and about. Praise the Lord! Mom and Dad have been to visit Mom's sister again, to Mom's favorite bookstore and on a drive to Half Moon Bay. Day is loving this new found opportunity for adventure. Mom appreciates seeing more than the hospital, Infusion Ward and apartment. How wonderful they can "travel" as they so both love doing! Dad said it makes the day go faster and gives Mom something to look forward to. It does sound like Dad will have a great birthday!
Mom is doing as well as anyone with Aplastic Anemia can expect to be doing. Each day is a gift from God and we praise Him for it.
Sunday, August 31, 2008
God Works the Night Shift
Mom was very upbeat when I talked with her this morning. She was receiving platelets since her numbers were at 10. She was very happy about her white blood cells reading at .9. They have been at .2 to .4 for a very long time. She hadn't had a fever since yesterday and was very optimistic. She only threw up once yesterday so this was encouraging to her as well. She still doesn't want to eat much. Food doesn't' taste very good to her. Before her last chemo treatment started the end of May, Mom weighed 155 pounds. Today she weighs 140 pounds. She has lost nine pounds in the last week. All this weight lost in not necessarily a good thing if her body isn't taking in all the nutrients it needs. The doctors are monitoring her closely.
Mom is currently reading a book called "God Works the Night Shift: Acts of Love Your Father Performs Even While You Sleep." The fact that Mom is reading again is HUGE. It has been very hard for Mom to concentrate in the last few months so reading had been difficult at best. Mom is being abundantly blessed by this book and would encourage anyone who is interested to read it as well.
Hope you day is blessed and filled with abundant joy!
Mom is currently reading a book called "God Works the Night Shift: Acts of Love Your Father Performs Even While You Sleep." The fact that Mom is reading again is HUGE. It has been very hard for Mom to concentrate in the last few months so reading had been difficult at best. Mom is being abundantly blessed by this book and would encourage anyone who is interested to read it as well.
Hope you day is blessed and filled with abundant joy!
Thursday, August 28, 2008
Stay the Course!
Mom has now been out of the hospital for a week. She is continuing on with treatment at the Infusion Ward. After seeing Dr. Shrier, Mom is only allowed to have medication that is prescribed by him. With Mom seeing so many specialists, she is sometimes put on medications that conflict with each other.
Yesterday when I talked with Mom (we had a delightful 30 minute conversation!), she said that she was not feeling quite as strong as she did while in the hospital. She still seems to be running a fever at night (around 2:00 AM) but is very excited about her ONE measurable neutrafil. Her platelets were at 8 so she was going to be receiving some today and her red blood cells are at 8.2 so he is anticipating some for tomorrow.
Mom was very happy about her weekend visitors. Felicia, Mark's delightful wife, and her daughter, Emilee (10), made their way north to visit Grandma. They came up on Sunday and left on Monday. This gave Dad an opportunity head back to the ranch to get a few things done. Mom had so much fun! Emilee played the guitar and sang for Grandma and Felicia filled Grandma in on all the comings and going in San Luis Obispo County. It was a wonderful visit!
Thank you again for all the concern support and prayers said on Mom's behalf. May your day be blessed.
Yesterday when I talked with Mom (we had a delightful 30 minute conversation!), she said that she was not feeling quite as strong as she did while in the hospital. She still seems to be running a fever at night (around 2:00 AM) but is very excited about her ONE measurable neutrafil. Her platelets were at 8 so she was going to be receiving some today and her red blood cells are at 8.2 so he is anticipating some for tomorrow.
Mom was very happy about her weekend visitors. Felicia, Mark's delightful wife, and her daughter, Emilee (10), made their way north to visit Grandma. They came up on Sunday and left on Monday. This gave Dad an opportunity head back to the ranch to get a few things done. Mom had so much fun! Emilee played the guitar and sang for Grandma and Felicia filled Grandma in on all the comings and going in San Luis Obispo County. It was a wonderful visit!
Thank you again for all the concern support and prayers said on Mom's behalf. May your day be blessed.
Friday, August 22, 2008
Home from the Hospital
Mom came home from the hospital yesterday. Dad said that she was continuing her visits to the Infusion Ward. This is whereMom was when I called. Dad said that Mom was feeling good today. She is eating better and walking which are both very good things. The doctor has put her back on the fungicide medication since recent tests show it has been making progress on the spots in her lungs. Praise the Lord! Mom continues to have digestive problems and is now on medication for that as well as stool softeners. With both of these medications, Mom seems to be more balanced. Yeah!
Please feel free to call Mom at either of the above numbers. You can also send her a card at the above address. It would be a blessing to Mom to her from you. Thank you for your prayers and support. Have a blessed day!
Please feel free to call Mom at either of the above numbers. You can also send her a card at the above address. It would be a blessing to Mom to her from you. Thank you for your prayers and support. Have a blessed day!
Tuesday, August 19, 2008
In the Hospital Again
Mom is in the hospital again. She has been at Stanford in the F Ground ward since Sunday. During this past week, Mom suffered from some chest pains that were diagnosed to be not heart related. Praise the Lord! Mom really had them on their toes for a while. She had been spending most of her time in the Infusion Ward needing medications twice daily. Because of the condition of her liver, Mom has been taken off all medications except her Cyclosporine and any electrolyte needs. She had been throwing up her evening medications and the antibiotics for her lung mold had not been working but continued to add to the stress to her liver.
As of yesterday morning, Mom's red blood levels were dropping a point every eight hours. She is apparently dumping blood somewhere and at this time it is unknown as to where. Her platelets have been dropping 1 (1000) a hour. She has been receiving regular transfusions for both. When Stasi was up to see Mom yesterday, she obviously did not feel well. She was shaking, trying to sleep under the covers most of the time and running a high fever that they can only treat with a lower dose of Tylenol every eight hours in order to not tax her liver further. Mom struggles with involuntary coughing and bile backed up which causes vomiting. Stasi said that Mom is miserable but will still say she is fine (like she did when I talked to her on the phone last night). What a trouper! She had not eaten much for the last 5 days, especially the last 36 hours due to vomiting. Her bowels have also been giving her some trouble but seemed to be back in working order last night. The doctors are hoping to stabilize her in the hospital. Prayerfully, Mom will be feeling better today.
Continued prayer is need for both Mom and Dad. It is hard on Dad to watch Mom when she is suffering and feeling miserable. Mom does her best to have a happy face whenever he is around but many times there is just so little she can do when her body is betraying her. Thank you for your support and concern. Mom is still receiving phone calls. You can reach her on her cell phone.
May your day be blessed and your health be good.
As of yesterday morning, Mom's red blood levels were dropping a point every eight hours. She is apparently dumping blood somewhere and at this time it is unknown as to where. Her platelets have been dropping 1 (1000) a hour. She has been receiving regular transfusions for both. When Stasi was up to see Mom yesterday, she obviously did not feel well. She was shaking, trying to sleep under the covers most of the time and running a high fever that they can only treat with a lower dose of Tylenol every eight hours in order to not tax her liver further. Mom struggles with involuntary coughing and bile backed up which causes vomiting. Stasi said that Mom is miserable but will still say she is fine (like she did when I talked to her on the phone last night). What a trouper! She had not eaten much for the last 5 days, especially the last 36 hours due to vomiting. Her bowels have also been giving her some trouble but seemed to be back in working order last night. The doctors are hoping to stabilize her in the hospital. Prayerfully, Mom will be feeling better today.
Continued prayer is need for both Mom and Dad. It is hard on Dad to watch Mom when she is suffering and feeling miserable. Mom does her best to have a happy face whenever he is around but many times there is just so little she can do when her body is betraying her. Thank you for your support and concern. Mom is still receiving phone calls. You can reach her on her cell phone.
May your day be blessed and your health be good.
Sunday, August 10, 2008
The Neutrapenic Sisters
Mom had a delightful outing today. Her first since she underwent ATG back in June. Mom was able to make a visit to her sister, Christine Egan and her husband, Ray. Both of these wonderful women just happen to be neutrapenic, a side affect of chemotherapy they have each recently been through. This means that both have to be extremely careful to not subject themselves to any germs so they don't get an infection which makes visiting each other easier since they are both being very cautious. Aunt Christine is working her way through a series of chemo treatments. Some days are better than others. Any prayers said on behalf of my aunt would be greatly appreciated. Dad also enjoyed his time with Aunt Christine and Uncle Ray. The four of them have been great friends for over 50 years!
Mom continues to go to the Infusion Ward twice a day to received her medications and have her levels tested. Some days are much longer than others. We are grateful the the great care that she receives while in the Infusion Ward. Mom still needs platelets and blood regularly, as well as her fungicide medication. Mom is also on a new drug that she receives Mondays, Wednesdays and Fridays. Dr. Shrier is hopeful it will "jump start" her white blood cells. We will continue to pray. One of the medications that Mom is taking regularly makes her hallucinate (see weird things and colors) for about an hour after she receives it. Mom is quite the trouper and is taking it all in stride. She occasionally needs a few other medications to keep her body in balance. When her body is in balance, everything else seems to work better. Her walking has been doing well which is a praise to God.
Mom said that things are going very well with Dad. She said that the first three days while Dad was coming up to speed with the new routine and dealing with his fears and concerns for Mom made things a bit rough. Now she says he "has come through like a gem" and is back to taking wonderful care of her. It seems that they have established a new routine for the season Mom now finds herself in and are doing great. What a blessing to my heart to hear! Thank you, God.
Now a few words about Stasi. For the last three months Stasi has been walking around with a torn hamstring. What she didn't know was the her hip bone was out of the socket also! She has been so busy caring for Mom and getting things done, she hadn't had time to actually deal with these problems. She didn't find out that her hip was out of socket and only being held together by muscle until this week. She only knew that she was in a lot of pain. Talk about being the good sport who is willing to "buck up" and get the job done! She has now had the bone put back and is in physical therapy to rebuild her muscles and fix all the things her body reworked while walking around "in pieces" the last three months. To top it all off, Stasi is now on antibiotics for being bit by a tick infested with Lyme Disease. There is always something! Stasi takes comfort that God is great yesterday, today and tomorrow and that He will do all things for her good and His glory. She will be just fine...Praise God!
Thank you for all your support and prayers on behalf of our family. Mom is blessed and encouraged by you all. May your day be blessed.
Mom continues to go to the Infusion Ward twice a day to received her medications and have her levels tested. Some days are much longer than others. We are grateful the the great care that she receives while in the Infusion Ward. Mom still needs platelets and blood regularly, as well as her fungicide medication. Mom is also on a new drug that she receives Mondays, Wednesdays and Fridays. Dr. Shrier is hopeful it will "jump start" her white blood cells. We will continue to pray. One of the medications that Mom is taking regularly makes her hallucinate (see weird things and colors) for about an hour after she receives it. Mom is quite the trouper and is taking it all in stride. She occasionally needs a few other medications to keep her body in balance. When her body is in balance, everything else seems to work better. Her walking has been doing well which is a praise to God.
Mom said that things are going very well with Dad. She said that the first three days while Dad was coming up to speed with the new routine and dealing with his fears and concerns for Mom made things a bit rough. Now she says he "has come through like a gem" and is back to taking wonderful care of her. It seems that they have established a new routine for the season Mom now finds herself in and are doing great. What a blessing to my heart to hear! Thank you, God.
Now a few words about Stasi. For the last three months Stasi has been walking around with a torn hamstring. What she didn't know was the her hip bone was out of the socket also! She has been so busy caring for Mom and getting things done, she hadn't had time to actually deal with these problems. She didn't find out that her hip was out of socket and only being held together by muscle until this week. She only knew that she was in a lot of pain. Talk about being the good sport who is willing to "buck up" and get the job done! She has now had the bone put back and is in physical therapy to rebuild her muscles and fix all the things her body reworked while walking around "in pieces" the last three months. To top it all off, Stasi is now on antibiotics for being bit by a tick infested with Lyme Disease. There is always something! Stasi takes comfort that God is great yesterday, today and tomorrow and that He will do all things for her good and His glory. She will be just fine...Praise God!
Thank you for all your support and prayers on behalf of our family. Mom is blessed and encouraged by you all. May your day be blessed.
Wednesday, August 6, 2008
Mom's Body is Not Working
Mom had her appointment with Dr. Shrier yesterday. Dr. Shrier is "the best of the best" when it comes to hematology & oncology. He is a "legend" among the doctors we have encountered while at Stanford Hospital. Dr. Shrier will be celebrating his 50th year working at Stanford Hospital this month. He is one of the reasons the hematology & oncology department at Stanford is what it is today. His colleagues have the utmost respect for him. Mom is blessed to be under his expertise and care.
Mom knew before her appointment the the news would not be good. Mom has been with Dr.Shrier for the last 3 years and knows when things aren't working to Dr. Shrier's satisfaction. It has been two months Mom had her IV ATG treatment and tests show that nothing is happening. Her body hasn't started to work yet. This means that she is making NO platelets, NO red blood cells or NO white blood cells of her own. She is being completely sustained by transfusions. Test results show that all the medications she is on to combat all of her many health issues, such as diabetes, high iron, low sodium, balancing electrolytes, destructive t-cells, etc. have gotten to be too much for her to take. Dr. Shrier has decided to take her off all medication except "what will keep you alive today". So for the meantime, Mom will only be on Cyclosporine to keep her t-cells in check and the fungicide to help with the mold in her lungs. All else will be on an as needed basis. Her medication will now all be given by IV since the pills have gotten too hard on Mom's stomach. She will go to the Infusion Ward twice daily to received her medications and have her levels checked. Dr. Shrier has also requested that a test to determine if Mom's heart has iron deposits be taken this week.
Before Mom's appointment, Mom received platelets. She was hoping to be in the best condition possible when Dad returned back to the apartment. Dad arrived back just in time for Mom's appointment with Dr. Shrier. He had a wonderful time on his trip but appears to be struggling. I think he is struggling with wanting Mom to be better so they can go back to their "normal" life, with Mom not having been able to travel with him, with thinking he is needed to be at the ranch while his wife needs him to be with him and if he is like me, the challenges of getting older. This has been a long hard three years on both Mom and Dad.
Stasi returned to her family after being with Mom for the last three weeks. She was sad to leave Mom but was looking forward to being with her children and husband again. Stasi let Mom know that if there ever comes a time when Mom can make the move back to SLO county, Mom is welcomed to live with her. Stasi's family has four drivers who can get her to medical appointments and a houseful of people who can see that all of Mom's needs are met. Mom appreciates knowing that she is loved.
Mom has been doing well with her walking. She is able to walk in the mornings while hanging on to her wheelchair. By the evening she is unable to do much walking but is still able to get to and from the bathroom which is fabulous. Mom is doing more for herself these days and her appetite has started to return. Praise the Lord!
Mom and Dad will be facing many challenges in the coming weeks. Mom's time in the Infusion Ward is anywhere from 5 to 12 hours daily which is wearing on her. Fortunately, the apartment is less than 10 minutes away to make the two trips daily. It is undetermined how Mom's body is going to react and/or recover from all the medical challenges it is currently enduring. Some days are better than others. They both would be happy for Mom to get well so they could return to the ranch. That doesn't appear to be God's plan anytime soon. Please pray for both Mom and Dad. Last but not least, Mom would love to hear from you if you have the time...a quick phone call or a short note in the mail...anything would be a blessing. Thank you for your support.
Many Blessings from Many Grateful Hearts!
Mom knew before her appointment the the news would not be good. Mom has been with Dr.Shrier for the last 3 years and knows when things aren't working to Dr. Shrier's satisfaction. It has been two months Mom had her IV ATG treatment and tests show that nothing is happening. Her body hasn't started to work yet. This means that she is making NO platelets, NO red blood cells or NO white blood cells of her own. She is being completely sustained by transfusions. Test results show that all the medications she is on to combat all of her many health issues, such as diabetes, high iron, low sodium, balancing electrolytes, destructive t-cells, etc. have gotten to be too much for her to take. Dr. Shrier has decided to take her off all medication except "what will keep you alive today". So for the meantime, Mom will only be on Cyclosporine to keep her t-cells in check and the fungicide to help with the mold in her lungs. All else will be on an as needed basis. Her medication will now all be given by IV since the pills have gotten too hard on Mom's stomach. She will go to the Infusion Ward twice daily to received her medications and have her levels checked. Dr. Shrier has also requested that a test to determine if Mom's heart has iron deposits be taken this week.
Before Mom's appointment, Mom received platelets. She was hoping to be in the best condition possible when Dad returned back to the apartment. Dad arrived back just in time for Mom's appointment with Dr. Shrier. He had a wonderful time on his trip but appears to be struggling. I think he is struggling with wanting Mom to be better so they can go back to their "normal" life, with Mom not having been able to travel with him, with thinking he is needed to be at the ranch while his wife needs him to be with him and if he is like me, the challenges of getting older. This has been a long hard three years on both Mom and Dad.
Stasi returned to her family after being with Mom for the last three weeks. She was sad to leave Mom but was looking forward to being with her children and husband again. Stasi let Mom know that if there ever comes a time when Mom can make the move back to SLO county, Mom is welcomed to live with her. Stasi's family has four drivers who can get her to medical appointments and a houseful of people who can see that all of Mom's needs are met. Mom appreciates knowing that she is loved.
Mom has been doing well with her walking. She is able to walk in the mornings while hanging on to her wheelchair. By the evening she is unable to do much walking but is still able to get to and from the bathroom which is fabulous. Mom is doing more for herself these days and her appetite has started to return. Praise the Lord!
Mom and Dad will be facing many challenges in the coming weeks. Mom's time in the Infusion Ward is anywhere from 5 to 12 hours daily which is wearing on her. Fortunately, the apartment is less than 10 minutes away to make the two trips daily. It is undetermined how Mom's body is going to react and/or recover from all the medical challenges it is currently enduring. Some days are better than others. They both would be happy for Mom to get well so they could return to the ranch. That doesn't appear to be God's plan anytime soon. Please pray for both Mom and Dad. Last but not least, Mom would love to hear from you if you have the time...a quick phone call or a short note in the mail...anything would be a blessing. Thank you for your support.
Many Blessings from Many Grateful Hearts!
Wednesday, July 30, 2008
A Day in the Infusion Ward
Mom is due to spend most of the day in the Infusion Ward today. She is scheduled for two units of red blood cells, along with a chest x-ray. This is in addition to all the regular medications she needs to take while there.
Mom continues to run a low grade fever off and on but has not yet hit the "dreaded" 100.4. Last night she got to 100.1 but was able to "ward it off" with some Tylenol...her new "best friend."
Mom has lost five pounds in the last week. Stasi is making some changes towards adding more calories to the protein Mom eats. Mom really struggles with eating because it makes her feel "sluggy" and uncomfortable after she eats. Food also no longer tastes as it once did for her. Mom is also facing issues with diarrhea, as if she needed to deal with anything else. She is also sleeping more which isn't always a positive indicator.
When I talked with Stasi, she said that Mom continues to be optimistic. Mom's usual morning greeting is "I am doing better than I was yesterday." The forever "I'm fine" gal! Surely it is only by the grace of God and her "I'm Fine" attitude that has enabled her to come this far while dealing with such overwhelming medical conditions.
Mom is still taking calls, especially while in the Infusion Ward. You can reach her on her cell phone at 805-235-6794. A quick "hello" would be a blessing!
Mom continues to run a low grade fever off and on but has not yet hit the "dreaded" 100.4. Last night she got to 100.1 but was able to "ward it off" with some Tylenol...her new "best friend."
Mom has lost five pounds in the last week. Stasi is making some changes towards adding more calories to the protein Mom eats. Mom really struggles with eating because it makes her feel "sluggy" and uncomfortable after she eats. Food also no longer tastes as it once did for her. Mom is also facing issues with diarrhea, as if she needed to deal with anything else. She is also sleeping more which isn't always a positive indicator.
When I talked with Stasi, she said that Mom continues to be optimistic. Mom's usual morning greeting is "I am doing better than I was yesterday." The forever "I'm fine" gal! Surely it is only by the grace of God and her "I'm Fine" attitude that has enabled her to come this far while dealing with such overwhelming medical conditions.
Mom is still taking calls, especially while in the Infusion Ward. You can reach her on her cell phone at 805-235-6794. A quick "hello" would be a blessing!
Tuesday, July 29, 2008
One Day at a Time
Mom continues to do as well as can be expected with all the medical challenges she faces daily. Stasi arrived back at the apartment on Sunday afternoon while Kathie returned home to be with her family. Kathie blessed Mom greatly with her wonderful care, support and encouragement to Mom. Mom is working hard to consume mass amounts of protein while avoiding sugar. Kathie has had lots of experience with this type of diet within her own family and was most helpful to Mom. Eating comes hard for Mom these days since she feels poorly after she eats or after she takes her medication which is four times a day. Hard to imagine.
Diana Sorensen, a dear friend of Mom's, and Morgan, Mom's oldest grandchild and Stasi's daughter, arrived at the apartment on Monday afternoon. Mom was delighted to see them both and is looking forward to enjoying their company through Wednesday. Stasi is also greatly enjoying Diana and Morgan's sweet fellowship.
Mom is still making her daily trips to the Infusion Ward. She spends at least three hours a day there, sometimes all day. Her fungicide medication alone takes two hours to administer! Add to that platelets, blood, magnesium or whatever else she may need that day and it makes for a long, tiring day.
When I talked with Stasi today, she said that Mom is not feeling as well as she has the last few days. Mom is running a low grade fever (99.4). Her fever is a major determining factor if she will be able to keep her transfusion/IV port. A fever of 100.4 means a trip to the hospital and her port will need to be removed. This would not be a favorable situation. Mom is also sleeping more, coughing and not quite her perky self. She continues to walk, sometimes even without her walker, which is wonderful! Her time lately in a wheelchair has been minimal the last five days. This is good. We will know more after she goes to the Infusion Ward today. At last count her platelets were 18, so she may need platelets today making it a longer day for her.
Please continue to hold Mom up in prayer. As well as she is doing under the circumstances, this is still a very hard road she is walking.
Diana Sorensen, a dear friend of Mom's, and Morgan, Mom's oldest grandchild and Stasi's daughter, arrived at the apartment on Monday afternoon. Mom was delighted to see them both and is looking forward to enjoying their company through Wednesday. Stasi is also greatly enjoying Diana and Morgan's sweet fellowship.
Mom is still making her daily trips to the Infusion Ward. She spends at least three hours a day there, sometimes all day. Her fungicide medication alone takes two hours to administer! Add to that platelets, blood, magnesium or whatever else she may need that day and it makes for a long, tiring day.
When I talked with Stasi today, she said that Mom is not feeling as well as she has the last few days. Mom is running a low grade fever (99.4). Her fever is a major determining factor if she will be able to keep her transfusion/IV port. A fever of 100.4 means a trip to the hospital and her port will need to be removed. This would not be a favorable situation. Mom is also sleeping more, coughing and not quite her perky self. She continues to walk, sometimes even without her walker, which is wonderful! Her time lately in a wheelchair has been minimal the last five days. This is good. We will know more after she goes to the Infusion Ward today. At last count her platelets were 18, so she may need platelets today making it a longer day for her.
Please continue to hold Mom up in prayer. As well as she is doing under the circumstances, this is still a very hard road she is walking.
Friday, July 25, 2008
Doing Well
Mom had a very good day yesterday. She walked more than she has in weeks and seemed to feel a lot better. It was definitely a good day.
Today Mom continued to do well. She received both platelets and red blood cells, along with her antibiotics while in the Infusion Ward. Two bags of blood were needed but there was only time for one so the second bag will come tomorrow. It will be interesting to hear if her iron level increases with this new transfusion. Hopefully not since she is already at such a dangerous level. I am not sure if she kept her activity level up again today but am hopeful she did.
Stasi returned home and Kathie is currently blessing Mom. We all appreciate the sacrifices Kathie and her family make to help Mom. Mom delights in her time with Kathie. They play cards together and Kathie reads to Mom. Lots of fun!
Thank you for all your prayers and support. Please do feel free to give Mom a call if you have a moment of time. She would love to hear how you and your family are doing. Many Blessings!
Today Mom continued to do well. She received both platelets and red blood cells, along with her antibiotics while in the Infusion Ward. Two bags of blood were needed but there was only time for one so the second bag will come tomorrow. It will be interesting to hear if her iron level increases with this new transfusion. Hopefully not since she is already at such a dangerous level. I am not sure if she kept her activity level up again today but am hopeful she did.
Stasi returned home and Kathie is currently blessing Mom. We all appreciate the sacrifices Kathie and her family make to help Mom. Mom delights in her time with Kathie. They play cards together and Kathie reads to Mom. Lots of fun!
Thank you for all your prayers and support. Please do feel free to give Mom a call if you have a moment of time. She would love to hear how you and your family are doing. Many Blessings!
Thursday, July 24, 2008
Very Happy
Mom was delighted to find herself leaving the hospital around 6:30 PM yesterday. She is very happy to be back at the apartment, able to sleep in her own bed and move around without being attached to something. Aah...the little things in life we so often take for granted! Mom had an uneventful night and plans to get in and out of the Infusion Ward as quickly as possible today.
Mom's next appointment with Dr. Shrier is on August 5th and her appointment with the urologist is scheduled for August 6th. Both appointments should reveal more information about the state of Mom's health and the next plan of action.
Stasi dropped me off at the San Francisco Airport at 4:30 AM and this is where I sit awaiting my connection into Denver and then on to Oklahoma City. I am sorry to have to leave Mom and Stasi but am most eager to see my family again. Stasi will be with Mom until Friday and then plans to spend the weekend with her family. Our fabulous cousin, Kathie, will be staying with Mom for the weekend. We greatly appreciate Kathie! Stasi will be back up with Mom on Sunday afternoon and plans to stay with her until Dad returns until after August 4th. My family is praying about a possible return trip for me before that time. We will see how things work out.
Dad and Travis are having a wonderful time in Samoa. Mom has had a couple of opportunities to talk with Dad since he has left. It is amazing when you think about how far technology has come. Talking on a cell phone across the world sounds like just being next door. It brought Mom great joy to hear Dad's voice and know he was having a delightful time with Travis.
I plan to check in with Stasi and Kathie to hear how things are going with Mom. I will update as I can. Mom is hanging in there and enjoying being out of the hospital. Thank you again for your prayers. Have a blessed day!
Wednesday, July 23, 2008
Leaving the Hospital
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Mom is more than excited that she will be leaving the hospital tonight. She should be finished up with her IV of fungal medication in about two hours. Then she will take a shower, sign a few papers and off we'll go! It is hard to believe that she has been in the hospital for five days. Time just keeps moving forward.
Mom is feeling much better but still has many challenges to deal with...diabetic issues, iron overload issues, malnutrition issues, blood and platelet issues and the side effects of each of these conditions. (An interesting side effect of Mom's iron overload is that she would probably set off the metal detectors if she tried to pass through airport security. Can you imagine?! good thing she has no plans to fly any time soon.) Mom is now having to make changes to deal with these in a proactive way to help ease the symptoms. Mom needs to eat LOTS of protein and avoid sugar. Mom needs to do as much as possible to move and keep her muscles working. This means using the bathroom instead her potty chair, showering frequently, sleeping less in the day, sitting in a chair as much as possible (especially for meals), and trying to live as "normal" of a life as possible. This is not easy to do when moving around is tiring and food doesn't taste very good. Mom is going to have to choose daily to work to make a difference in her activity level remembering that "if you don't use it, you lose it." She will also have to choose to eat even if she doesn't want to or her malnutrition will have to be handled in a different way. I am confident that Mom can make these changes. After all, she has God on her side..."I can do all things through Christ who strengthens me." ~Philippians 4:13
Dr. Zach Koontz is our new favorite "super hero" disguised as a doctor. Dr. Koontz has fabulous a bedside manner and is very perceptive. Not only has Dr. Koontz blessed Mom, he has been a blessing to Stasi and me as well. Dr. Koontz, we greatly appreciate you! Dr. Koontz has not been alone in his quest to care for Mom. He has been surrounded by the rest of the "super hero" team doctors here in ocology...all who a terrific at what they do to bless their patients.
Liz has also been a blessing during Mom's hospital stay. Today we discovered that not only does she save lives by day as a RN in oncology, she serves the general population at night by working at the Pottery Barn. This added a cape to her "super hero" costume in our eyes. Liz has been a source of delight, encouragement and inspiration. Thank you Liz! Oncology is staffed with the BEST nursing staff anywhere...the proof is in the care. May God bless each and every one of you!
Gerry has been Mom's nurse's aide today. Gerry is a "regular" here in oncology and we have been blessed by her care during many of Mom's hospital visits. She is sweet and always has a twinkle in her eye. To Gerry and ALL the nurse's aides who have faithfully, selflessly and kindly serve Mom, we say THANK YOU!
Mom will continue her daily visits to the Infusion Ward beginning tomorrow morning. Her appointment is a 9:30 AM. They will be checking all her levels to help keep her in balance and things moving forward in a positive direction. This will be a good thing.
We will soon be back at the apartment. Starting tomorrow, you can reach Mom at either of the numbers posted at the top of this page under the blog heading. Mom appreciates your prayers, encouragement and call. Thank you!
Janet & Lasagna
Mom had a delightful visit Janet Grinstead yesterday. As a matter of fact, we all did! We figured out that we have been friends with Janet for eight years. How time flies! Janet only lives an hour away from Stanford but is currently vacationing out of town with Jim, her "what-a-guy" husband, in Pinecrest. She blessed us all by making the 3-1/2 hour trip into town just to visit. What a good friend! Janet arrived at 11:30 AM and stayed until 7:30 PM. We got in lots of good visiting. Yeah!!
While visiting, Janet shared a family favorite recipe for Lasagna. Janet received this recipe from her friend, Diane Berry, 35 years ago. This recipe is one of her most requested when she takes it to potlucks and has stood the test of time. I am eager to give it a try. I have posted it below just for fun.
While visiting, Janet shared a family favorite recipe for Lasagna. Janet received this recipe from her friend, Diane Berry, 35 years ago. This recipe is one of her most requested when she takes it to potlucks and has stood the test of time. I am eager to give it a try. I have posted it below just for fun.
Janet Grinstead's Famous Lasagna
- 1/2 pound sausage
- 1 pound ground turkey or beef
- 1 can cream of chicken soup
- 1 pkg. onion soup mix
- 1 6 oz. can tomato paste
- 1 8 oz. can tomato sauce
- 1-1/2 cups of water
- 1-1/2 teaspoons Italian seasonings
- 1 box lasagna noodles (cooked)
- 1-1/2 cup ricotta cheese
- 1-1/2 cup mozzarella cheese
Cook sausage and ground turkey/beef in skillet until browned. Mix in cream of chicken soup, onion soup mix, tomato paste, tomato sauce, water and Italian seasonings. Simmer for 20 minutes. In a greased 9 x 13 pan, put a light layer of meat mixture on the bottom. Then layer noodles, meat mixture and cheese. Repeat until pan is full. Bake at 350F for 40 minutes. ENJOY!
I also think that there may tie-dye in our future. Janet's family has a annual tradition of everyone making tie-dye clothing during their summer vacation. They are actually known in Pinecrest as the tie-dye family. How fun! Her favorite source for tie dye products is the Dharma Trading Company. We can't wait to check it out. She is wearing one of her tie-dye shirts in the photo above. A favorite of ours!
Hope your day is blessed. We will post an update on Mom ASAP.
Tuesday, July 22, 2008
Staying Another Day
Last night Mom spiked a fever and had stomach pains which have earned her another night stay here at Stanford Hospital. Around 5:00 PM things started to change from Mom truly feeling fine to "something is not right." Fortunately, Konstantin was able to give her something to reduce her fever and subside her pain and she ended up having a good night. Although she feels better this morning, the doctors are concerned about this recent turn of events and want to run a few tests. Mom is scheduled to have an Eco cardiogram sometime today at 1:00 PM to check out her heart. Mom has continues to struggle with her magnesium level. Today she was at 1.3 and needed four bags to bring her up to speed. She was low! A normal is level is 1.8-2.4. A fever can be a big deal so they will continue to monitor all her vital signs to gauge her progress.
Mom's appetite has not been very good so Ensure has become her new best friend. It was no small accomplishment when she chose to sit in a chair and have her Ensure this morning. She is even going try to eat her lunch while sitting in a chair. Little steps in the right direction are definitely something to be thankful about! Mom also has plans to take a shower and get her transfusion port dressing changed today. We also hope to see the art therapist, along with a visit from our dear friend, Janet Grinstead. It should be a full day for Mom. Wahoo!!
Mom was blessed with excellent care from Aimee last night. Today Brian is taking care of Mom. he is absolutely delightful and truly goes the extra mile for his patients. All of Mom's nurses and caregivers have been wonderful! We appreciate the competent and caring staff of Stanford Hospital more than words can express. These are the "super heroes" of life disguised as medical professionals. Thank you, thank you, thank you to each and everyone one of you!
Stasi returned late last night driving the sporty rental car that made her look good while drive it (at least that is what we'd like to think!). We forgot to take the camera when we dropped off the car so the nicely dressed Enterprise guy was spared from our neurotic photo taking ways. It is GREAT to have Stasi back.
We have started talking with the Ann, the Oncology Social Worker, about how we can best help Mom when she leaves the hospital. Ann is going to help get us all the supplies to make life in the apartment easier for Mom's care. She is also going to help us look into getting a caregiver who can come in a couple days a week to help out with the more difficult challenges Mom faces and give Dad some respite when he needs it. All this is a lot for Mom to process. No one likes to think they have come to a place when they need more than the usual care. With Mom's levels going out of balance at a drop of a hat and Mom's physical condition able to change hourly, we are now dealing with entirely different issues than we have previously faced after Mom went through ATG. Mom is doing the best anyone could expect but the bottom line is that she has had to deal with Aplastic Anemia for over three years.
Mom knows that she is only here by the grace of God and praises Him for another day. We would covet your prayers on Mom's behalf as she comes to terms with some many major changes. Thank you.
Monday, July 21, 2008
Doing Better
Yesterday was a very rough day for Mom. She felt lousy and wasn't her usual optimistic self. This is completely understandable with all that is going on within her body. Today she is doing better. Praise the Lord!
Mom is having trouble with her iron level due to all her blood transfusions. She is at 4900+ and being under 1000 is where she should be. This means that Mom will most likely be put on a medication (Exjade) to help flush out all the extra iron. One of the side affects of Exjade is chronic diarrhea. Mom is not looking forward to this since this is a medication she would be on long term. We are waiting for Dr. Shier to return at the end of the month to get the okay to start her on Exjade. They doctors are continuing to watch Mom's port for infection. They have decided to not pull it at this time but are concerned that if she gets another infection they will have to remove it. We are grateful that Mom can keep it in at this time. As for Mom's most recent infections, the doctors feel that they can be handled with antibiotics while out of the hospital. This means that they hope to release Mom tomorrow. Yeah!
Mom seems to do best while in the hospital. Her levels are more stabilized, her mobility seems to improve and her bodily functions are easier to control. We are working with the doctors to make it easier for Mom when she is released and returns to the apartment. The new plan will be to test most all her levels daily while in the Infusion Ward. This should help stop the roller coaster of side effects of electrolytes being out of balance.
Mom's nurses have all been wonderful! Brenda was her nurse last night and she gave Mom excellent care. We actually think that Brenda is an angel just dressed as a nurse. It blesses our heart to see the nurses care for our mother as if she was their own mother. Beth was also a blessing to Mom is many ways as she came and went throughout the day yesterday. Konstantin is Mom's nurse today. He is going to help get her prepared so she can take a shower. Wahoo!! I know that Mom will feel even better all fresh and clean. He is skillful in all that he does and is quite charming. Loyda is actually going to help Mom with her shower. Loyda is delightful and most helpful. She makes sure all Mom's needs are being met, makes sure her linens are clean and is a ray of sunshine to our day.
If you tried to call Mom yesterday and couldn't get through, we are sorry. We didn't discover until late last night that Mom's phone was not working. It has been fixed so please feel free to call if you'd like. You can reach her at 650-725-9390.
It is just Mom and me today. We are enjoying this time together. Stasi left very early this morning to return home for a board meeting and to take care of a few things at home. I miss her and will look forward to her return early tomorrow morning.
We did have fun picking up her rental car yesterday. There is a car rental place her on the Stanford Campus just a minute from the hospital. We picked up a car for her to make the trip home so I could have Mom's car here. The rental guy was very nice and quite the snazzy dresser. He acted like most people don't ask to take his photo when they rent a car from him...go figure.
Things are improving and the day looks all the brighter. We have written the following verse on the board in Mom's hospital room to encourage her and those who come in to see her.
"This is the day the Lord has made, I will rejoice and be glad in it." ~Psalm 118:24
Thank you Lord for another day!
Mom is having trouble with her iron level due to all her blood transfusions. She is at 4900+ and being under 1000 is where she should be. This means that Mom will most likely be put on a medication (Exjade) to help flush out all the extra iron. One of the side affects of Exjade is chronic diarrhea. Mom is not looking forward to this since this is a medication she would be on long term. We are waiting for Dr. Shier to return at the end of the month to get the okay to start her on Exjade. They doctors are continuing to watch Mom's port for infection. They have decided to not pull it at this time but are concerned that if she gets another infection they will have to remove it. We are grateful that Mom can keep it in at this time. As for Mom's most recent infections, the doctors feel that they can be handled with antibiotics while out of the hospital. This means that they hope to release Mom tomorrow. Yeah!
Mom seems to do best while in the hospital. Her levels are more stabilized, her mobility seems to improve and her bodily functions are easier to control. We are working with the doctors to make it easier for Mom when she is released and returns to the apartment. The new plan will be to test most all her levels daily while in the Infusion Ward. This should help stop the roller coaster of side effects of electrolytes being out of balance.
Mom's nurses have all been wonderful! Brenda was her nurse last night and she gave Mom excellent care. We actually think that Brenda is an angel just dressed as a nurse. It blesses our heart to see the nurses care for our mother as if she was their own mother. Beth was also a blessing to Mom is many ways as she came and went throughout the day yesterday. Konstantin is Mom's nurse today. He is going to help get her prepared so she can take a shower. Wahoo!! I know that Mom will feel even better all fresh and clean. He is skillful in all that he does and is quite charming. Loyda is actually going to help Mom with her shower. Loyda is delightful and most helpful. She makes sure all Mom's needs are being met, makes sure her linens are clean and is a ray of sunshine to our day.
If you tried to call Mom yesterday and couldn't get through, we are sorry. We didn't discover until late last night that Mom's phone was not working. It has been fixed so please feel free to call if you'd like. You can reach her at 650-725-9390.
It is just Mom and me today. We are enjoying this time together. Stasi left very early this morning to return home for a board meeting and to take care of a few things at home. I miss her and will look forward to her return early tomorrow morning.
We did have fun picking up her rental car yesterday. There is a car rental place her on the Stanford Campus just a minute from the hospital. We picked up a car for her to make the trip home so I could have Mom's car here. The rental guy was very nice and quite the snazzy dresser. He acted like most people don't ask to take his photo when they rent a car from him...go figure.
Things are improving and the day looks all the brighter. We have written the following verse on the board in Mom's hospital room to encourage her and those who come in to see her.
"This is the day the Lord has made, I will rejoice and be glad in it." ~Psalm 118:24
Thank you Lord for another day!
Sunday, July 20, 2008
Not So Fine
Today finds Mom feeling "not so fine." Mom told the doctors this morning that she feels "awful all over." This could be because of her low platelet count, low sodium level and the two different infections that were detected and are now being cultured. The doctors and nurses are doing all they can to help Mom and are very sensitive to her needs. Because Mom has not been feeling well this morning, we had to what to take our daily photo until Mom had received some of her medications to "perk" her up and bring her back to good humor. Things are already looking better.
We are delighted to have Liz back again today as Mom's day nurse. Liz is great with Mom and finds Stasi & me somewhat amusing which totally works for us. Along with Liz, Ashley has been assigned to care for Mom. Ashley is another of Stanford's "Super Heroes." She is wearing a fun ladybug scrub, has a sweet smile and is truly a gem.
We did hear from Dad and Travis last night. They arrived in Samoa safely and are having a great time. Dad is grateful that Mom is receiving good care and is looking forward to an encouraging report when he has opportunity to call next.
The plan is still not to release Mom from the hospital until the doctors feel confident that the antibiotics they are using will work to take care of the new infections. This is going to take some time. We are trying to prepare Mom that she could be here for awhile. Only time will tell. Thank you again for your support and encouragement.
Saturday, July 19, 2008
Happy Birthday Mark!
Mom's middle baby turned 45 years old today. WOW! Where has the time gone? I still remember the sweet little kid who couldn't smell things (until he had surgery on his nose at 4-1/2 years) and carried around a dead fish that Mom would refreeze again every night. Aah...the delightful memories of childhood! Mark called this morning to wish Mom a "Happy Birthing Day." Mom enjoyed Mark's call immensely.
Happy 45th Birthday Mark! May God bless you with many more years of making memories.
Happy 45th Birthday Mark! May God bless you with many more years of making memories.
A Room with a View
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Mom awoke this morning feeling better and happy to be back in the hospital. She is looking nothing like the woman we dragged into the hospital last night. She looks so much better. Although being in the hospital isn't always her first choice, she does appreciate being here in Ground F. She gets excellent care, has a wonderful room with a great view, and feels comfortable in familiar surroundings. Stasi and I did have to tease Mom a little about her complaint that she was woken up occasionally by the nurse through the night. Over the last few nights, Mom had woken Kathie up at least five times each night!
Stasi and I are up to our usual routine of photos with Mom and finding ways to amuse ourselves with a camera. It always brings us joy that Mom puts up with us and that the staff just smile and play along. A sense of humor is a wonderful gift to have when life gets "hard" and things don't go as we'd like. Thank you God for the gift of laughter! Taking less than flattering photos of ourselves, finding toilet paper stuck to the bottom of our shoes, friends (new & old) to share a laugh with...all things to remind us that life is short, precious and not to take ourselves too seriously.
Liz, Mom's day nurse, is delightful! We appreciate all that she is doing to meet Mom's every need. The doctors arrived this morning to evaluate Mom's condition. What a great group of people! As much as they would like to send Mom home, they have no intention of releasing her until they are sure things will go well for her back at the apartment. They will continue to monitor her, review her levels from this morning and follow up on her nighttime activities.
We will post more later. Thank you for your prayers. Have a blessed day!
Friday, July 18, 2008
We're Back!
Mom had a good morning today. Things went well at the Infusion Ward and all seemed be going in the right direction until this afternoon. Mom started to get warm and by the time Stasi and I arrived this evening her temperature had risen to 102.7. Mom was lethargic and extremely tired. Stasi called the doctor to report Mom's fever. We were instructed to bring Mom to the hospital and this is where we sit.
Mom was not in the least interested in returning to the hospital but complied with the doctor's request. The interesting thing is that when we finally got to the hospital, she admitted how badly she felt and that she knew this is where she needed to be. Mom is back in her beloved F Ground Ward among friends...the nurses and doctors that have so skillfully taken care of her every so often in the past. Stasi and I also received a warm welcome. Apparently if you run around with a camera, laugh a lot and wear clothes that blend, folks tend to remember you...go figure?! Nevertheless, Stasi and I are very fond of the staff in F Ground. A very capable group of medical professionals with fabulous senses of humor! We didn't skip a beat and took photos of all the folks who are working hard to bless Mom.
Mom was not in the least interested in returning to the hospital but complied with the doctor's request. The interesting thing is that when we finally got to the hospital, she admitted how badly she felt and that she knew this is where she needed to be. Mom is back in her beloved F Ground Ward among friends...the nurses and doctors that have so skillfully taken care of her every so often in the past. Stasi and I also received a warm welcome. Apparently if you run around with a camera, laugh a lot and wear clothes that blend, folks tend to remember you...go figure?! Nevertheless, Stasi and I are very fond of the staff in F Ground. A very capable group of medical professionals with fabulous senses of humor! We didn't skip a beat and took photos of all the folks who are working hard to bless Mom.
Tonight they are running blood tests, taking chest x-rays and doing all they can to figure out why Mom is running a fever while on antibiotics. We should have a better picture of things in the morning.
Before I share with you my amusing airport adventure, I must thank Kathie for the WONDERFUL care she so thoughtful and kindly gave to Mom. Kathie set up Mom's medication schedule in a way to make it possible for anyone to keep things straight. Not an easy task being there are 16 different medications to be taken at four different times! Kathie gave up time with her family and lots of sleep to make sure that every need of Mom's was met. Kathie also played cards with Mom, read to Mom, helped Mom to exercise her muscles and did so much more. Thank you, thank you, thank you Kathie! You are a treasure.
As for my airport adventure, I was due to arrive into San Francisco around 1:00 PM. I finally arrived in at 5:30 PM, hence the later than planned arrival time to be with Mom. I left my house this morning at 3:00 AM California time so it has been a long day and I admit I might not be quite as on my toes as I would like to think. When I got my luggage from baggage pick up, we noticed that it was soaked. Ugh! As Stasi and I were coming down the escalator, I smelled beer. I found myself thinking that the man behind me must have really tanked up on the plane and was going to mention something to Stasi. Just then Stasi noticed that it was my suitcase that smelled like beer! So how did that happen? This is a first for me. I have had luggage come out wet from rain but never soaked with beer. Fortunately, most everything was dry except one skirt. I decided to put it on to dry (and it made me blend better with Stasi) and off we went. What was I thinking?!! Now my suitcase is on Mom's porch causing the neighbors to wonder about the smell and I sit here in the hospital causing the staff to wonderful if I took up drinking. It was funny at the time.
We don't know how long Mom will be here in F Ground Room F042. You can reach Mom at 650-725-9390 As always, she would love to hear from you. Many Blessings!
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